Monthly Archives: May 2016

The invisible language

The changes wrought by illness to our habitual movements and sensations affect, of course, not only the emotions experienced but the manner of their expression as well. It is difficult if I am in a wheelchair to stomp off in … Continue reading

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We flee from sadness.

We flee from sadness.  Attempts to discuss sadness are often deflected by people unable, apparently, to tolerate their own fears of loss and distress. In families with illness, our children and intimates are often shielded from the sadness that is … Continue reading

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At the limit of our being…

The topic I chose to write about today emerged in a quite wonderful way. This morning I was looking through some quotations to add to the “Others Words” section of www.robertshuman.com. I chose a selection from Sarah Bakewell’s book, “At … Continue reading

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Practice makes…

Perfectionism ought to be one of the first “shoulds” we give up as we experience the jumbles and fumbles of chronic illness and disability. Can we do anything “right?” Are there plans that do not go awry? Once ill or … Continue reading

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And unto him that smiteth thee on the one cheek offer also the other

Much of our suffering is unnecessary. Maybe we have met with a doctor and we are frustrated, perhaps even angry. He has sent too little time with us or she has given us inadequate information. Whatever it might be, we … Continue reading

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Who is family?

Many burdens fall our families as we live with chronic illness, aside from the obvious ones of increased demands upon resources of money, time, and physical energy. An unexpected stress is the issue raised by chronic illness of family membership … Continue reading

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Texture of time

For individuals and families living with chronic illness, the experience of the present is likely to acquire a texture much different from what prevailed before diagnosis. Illness disrupts the large and small tides and rhythms that we hold onto amid … Continue reading

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